PALLIAKID is an interdisciplinary project aiming to evaluate the feasibility, effectiveness, and cost-effectiveness of novel interventions for children, adolescents and young people (AYA) with palliative and end-of-life care needs in different healthcare systems across Europe, with a focus on those factors that influences the active patients' and family caregivers' engagement.
PALLIAKID responds to several needs or gaps identified by the consortium clinical partners, grouped into three cornerstones of paediatric palliative care:
- Early identification of children and AYAs with palliative and end-of-life care needs
- Comprehensive assessment of children and their family caregivers' needs
- A comprehensive, personalised, interdisciplinary care plan including Advance Care Planning.
Finding solutions together
The proposed solution entails three main results: PALLIAKID Eary Detection System, PALLIAKID intervention (Needs assessment, Advance Care Planning and Patient Journey digital platform); and PALLIAKID XR-based capacity-building program for professionals.
In addition, the project will develop policy recommendations, guidelines and standards for patient-centred communication, together with a scale-up strategy to guarantee the project result's’ sustainability and impact. In this sense, PALLIAKID aims to reduce taboos and misunderstandings of paediatric palliative care with its activities and the planned Public Engagement Strategy.
The project is coordinated by Fundacio Privada Per a la Recerca I la Docencia Sant Joan de Deu, Spain with consortium of 19 project partners from 10 European countries.
Contact
Eija Raatikainen,
Project Manager at Metropolia University of Applied Sciences
eija.raatikainen [at] metropolia.fi (eija[dot]raatikainen[at]metropolia[dot]fi)
Project webpage: https://palliativeprojects.eu/palliakid/